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Discussion Topic  RE: Cold Climate Challenges (in Open Topic) by Ben
I fully agree with you Ronald. It became a safety issue of not being able to get outside when there ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Cold Climate Challenges (in Open Topic) by Ben
Hi Kevin, FWIW: I'm currently in the northeast and am moving to avoid being in such a cold climat......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Facial paresis (in Open Topic) by Ben
I've experienced that in the cold before as well. My experience sounds like Mike's....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: A Heartbreaking Day (in Open Topic) by Ben
I am so sorry. Sending you both love and strength. Truly hoping things stabilize and start reversing......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Arginine as potential disease-modifying drug (in Discussion of Papers) by Ben
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: First use of CRISPR to edit genes in the human body (in Open Topic) by Ben
This is exciting....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  KD on Reddit (in Open Topic) by Ben
Hi all! After realizing I'm missing out on discussions on Facebook and that perhaps this forum doe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: New on board (in Open Topic) by Ben
I fully agree. I also agree with the general thought that repeat count correlates with age of onset,......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: New on board (in Open Topic) by Ben
It seems like diagnosing neuro diseases can be really tricky - my grandfather lived for 15 years thi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: New on board (in Open Topic) by Ben
Hi Hunor! Welcome! Yeah, my symptoms started very similarly, but in my late 20's. I had really bad ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Fasting and autophagy (in Open Topic) by Ben
Not to hijack this post, as I'm extremely interested in the role IF plays with autophagy, but... I ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Marijuana CBD vs. Opioids (in Medications and Therapies) by Ben
I have tried opioids, cbd and thc. The opioids help with pain, but I only take 1/4 to 1/2 half a pil......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Vibration? (in Open Topic) by Ben
I have had this vibrating sensation in my entire body before, many times while falling asleep. I hav......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Wondering about this (in Open Topic) by Ben
Hi All! Lilly - I'm very sorry to hear about your sister. I hope things get better soon for you bot......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 25 years old high CPK level (in Open Topic) by Ben
I really needed to hear your positive words tonight raxel19. Thank you so much. Henry - best of lu......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: A high whey protein, vitamin D and E supplement preserves muscle mass, strength, and (in Discussion of Papers) by Ben
Hi Todd! That's great you were able to add so much muscle! Are you doing a ketogenic diet at the ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: Could genome editing be a cure? (in Medications and Therapies) by Ben
I'm holding out hope for the RNA editing uses of CRISPR rCAS9. They've had strong success with hered......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Early correct diagnosis? (in Open Topic) by Ben
I should also note I'd spent about 8 years trying to figure out what was happening to my body, and h......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Early correct diagnosis? (in Open Topic) by Ben
My grandfather was diagnosed with ALS in the early/mid 80's. He lived another 13 years, and died of ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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