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Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bruce
Debbie, thank you for joining our forum. I am not aware of spice related laryngospasms. I hope some......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: New Member (in Spouses & Significant Others) by Bruce
CKNYC, Avodart is the brand name for dutasteride. There was a clinical trial using Avodart a few ye......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: New Member (in Spouses & Significant Others) by Bruce
My CAG number is 53. I began noticing hand tremors in the late 20s and slight weakness in the legs ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: New Member (in Spouses & Significant Others) by Bruce
Christie, thank you for joining the KDA Forum. Between this forum, the KDA website and my blog (Liv......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Thumbs face inward when standing. (in Open Topic) by Bruce
I recommend abdominal breathing and practice it every day and often twice or three times a day. I w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Thoughts on letting go of favorite activites (in Open Topic) by Bruce
I performed Tai Chi for several years and then moved on to Qigong when I could no longer lift a leg ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Thoughts on letting go of favorite activites (in Open Topic) by Bruce
Dan, this is a good topic and one I have addressed in my blog. Thanks for including it in the forum......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Jaw muscles (in Open Topic) by Bruce
For several years my jaw would pop out of joint and I would have severe pain occasionally when this ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: reclast (in Medications and Therapies) by Bruce
AllanR, thanks for the continued update. Based upon your two episodes, I am glad I did not go ahead......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Any experience with sensory neuropathy / burning feet and ankles? (in Open Topic) by Bruce
Dan, it is not a dumb question. It is a real one. With less feeling it is difficult to sense movem......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any experience with sensory neuropathy / burning feet and ankles? (in Open Topic) by Bruce
Dan, neuropathy is quite common even though for years it was not shown as a symptom. I have little ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: New Here (in Spouses & Significant Others) by Bruce
Speaking of Social Security-Disability, the KDA published an information guide on ways to help gain ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: New Here (in Spouses & Significant Others) by Bruce
Maria, your parents should ask for a copy of the actual DNA test results. It will show the actual n......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: New Here (in Spouses & Significant Others) by Bruce
The DNA blood test is 99% accurate. Yes, there could be a mistake, but the CAG triplet repeat count......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: My biggest thanks (in Open Topic) by Bruce
Maria, we would love to have you join one of our chat room sessions. The first Saturday of each mon......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Swallowing exercise? (in Exercise Discussion) by Bruce
Lolo, my neurologist as well as my physical therapist gave me lung exercises and they seem to help. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Swallowing exercise? (in Exercise Discussion) by Bruce
Randy, I use a foam wedge that is about two feet long and raises my head about twelve inches. I sti......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bruce
Stephanie, Thank you for sharing your thoughts on what it has been like "living with Kennedy's Dise......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: gynecomastia and OTC drugs (in Food and Nutrition) by Bruce
Randy, it is my understanding that because our mutated genes the Androgen Receptors (AR) no longer d......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: assisted breathing (in Open Topic) by Bruce
Deb, yes, the MDA clinics can be quite good especially if you have the right doctor. You can locate......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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