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Discussion Topic  RE: Recently Diagnosed (in Open Topic) by Bruce
Darwyn, I would like to add a little more to Terry's reply. His experience with KD symptoms plataui......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Grab Bars for Shower or Bath (in Accesibility) by Bruce
Terry, the have two clips ... one on each end ... and have suction cups. When you push the clips fl......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  Grab Bars for Shower or Bath (in Accesibility) by Bruce
I installed two removable grab bars in my shower. These were recommended by my local medical equipm......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  How to Deal With Loneliness (in Open Topic) by Bruce
I found this on the web and thought it has some good advice for those without significant others or ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Knees Buckling (in Exercise Discussion) by Bruce
Exercise Update: I am now up to 3½ minutes on each leg, 20 twists to each side, and 180+ steps in p......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Knees Buckling (in Exercise Discussion) by Bruce
For several years my knees have buckled without any warning. Several times I have broken bones in t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Poll  RE: Does cold Weather affect KD? (in Open Topic) by Bruce
I lived in the north for several years. The older I became, the more the cold bothered me. The col......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Endothil-CR (in Medications and Therapies) by Bruce
Dan, before taking any medications, I would recommend that you check with your neurologist. He/she ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Impact of Novocaine (in Open Topic) by Bruce
I haven't experienced any problems with novacaine or a local given by a dentist. If you are concern......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Exercise (in Exercise Discussion) by Bruce
Dan, it sound like you are doing great. Keep it up, but just don't over do the exercise portion of ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Poll  RE: Does your mother have KD symptoms? (in Open Topic) by Bruce
My mother passed away several years ago, but in her later years she did show many signs of having KD......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: DNA Testing (in Open Topic) by Bruce
Barb, often the sharing of personal stories and talking with others who share the same diagnosis is ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: DNA Testing (in Open Topic) by Bruce
The answer really depends on the lab being used. It can take as long as 4-6 weeks. In the two test......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: DNA testing for Possible Carriers (in Carrier Discussion) by Bruce
Bob, the book is good information. When your doctor publishes the book, please let us know so we ca......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: DNA testing for Possible Carriers (in Carrier Discussion) by Bruce
A few follow-up thoughts. 1. My insurance carrier covered the cost of DNA testing (I was tests twi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: DNA testing for Possible Carriers (in Carrier Discussion) by Bruce
Yes, you can be tested. It is my understanding that your family members can also be tested at this ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: Handicap Assessible Homes (in Open Topic) by Bruce
There is a good guide provided by AARP called, "The Do-able Renewable Home - Making your home fit yo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Social Security - Disability Guide (in Social Secuirty-Disability and Financial Discussion) by Bruce
I also posted this same message under Finance. For those who are considering early retirement becau......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Social Secuirty-Disability and Financial Discussion

Discussion Topic  RE: Things that work for me... (in Accesibility) by Bruce
Bob has done a wonderful job of putting down his thoughts and experiences. I use a power-lift rec......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Power Chair/Scooter or Manual Wheelchair (in Mobility Aids) by Bruce
I have a Jazzy 1121. It is a mid-wheel drive chair that is quite maneuverable (21" turning radius) ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids


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Kennedy's Disease Association
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