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Discussion Topic  RE: Achalaisa (in Open Topic) by Bruce
Lori, no doctors shown in NM, but several shown in AZ and TX. Go to: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Kennedy's Disease? (in Open Topic) by Bruce
I looked up Hirayama's Disease. I noticed it is another disease without a treatment. The atrophy is......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: CPK level is high (in Open Topic) by Bruce
James, no, just sitting around would be detrimental to your quality of life. It is important to kee......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: CPK level is high (in Open Topic) by Bruce
Cam, my doctor explained it to me this way. The breaking down of the muscles creates a higher CPK a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: CPK level is high (in Open Topic) by Bruce
Cam, my CPK was high for several years (>800, but < 1,000), but fortunately I have been able t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Mutant Protein in Muscle Linked to Neuromuscular Disorder (in Open Topic) by Bruce
This is too far over my head to explain it, so I went to Wikipedia for help and it is still over my ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Mutant Protein in Muscle Linked to Neuromuscular Disorder (in Open Topic) by Bruce
You need to discuss your concerns as well as any other health issues with your doctor. He is best p......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Mutant Protein in Muscle Linked to Neuromuscular Disorder (in Open Topic) by Bruce
Ed provides a good synopsis and his recommendation is right on. I know of several men that take dut......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Mutant Protein in Muscle Linked to Neuromuscular Disorder (in Open Topic) by Bruce
A press release from U.C.-San Diego possibly shed new light on a potential treatment for Kennedy's D......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Nuedexta study for ALS (in Medications and Therapies) by Bruce
Eric, that is interesting about your reaction to Quinine. My neurologist recommended it to me also. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Question about house modifications for accessibility (in Accesibility) by Bruce
Dan, you ask a good question. Since I don't know your current capabilities, I can't respond to all ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Stiff Neck, anyone? (in Open Topic) by Bruce
John, thanks for the update. I am sorry to hear that things haven't improved much, but at least you......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Improve the strength and flexibility of your fingers (in Exercise Discussion) by Bruce
Maggie, I use a wheelchair for mobility these days. It is much safer. I broke several bones when m......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Improve the strength and flexibility of your fingers (in Exercise Discussion) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: ICD-10 Codes for SBMA (in Open Topic) by Bruce
Bob, I do not have a clue. I'll check and see what I can find out for you. Dr. Fischbeck came back......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: NIH Announces New Clinical Trial (in Open Topic) by Bruce
Since the real trial (Part B) doesn't start until January of next year, showing your interest is pro......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  NIH Announces New Clinical Trial (in Open Topic) by Bruce
On Saturday morning, Dr. Kenneth Fischbeck from the National Institutes of Health was the guest for ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: here is new member, search way to live with KDA patient (in Medications and Therapies) by Bruce
Maggie, thank you for posting your thoughts in the KDA Forum. I believe it is important to lightly ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: New Clinical Trial Begins This Month (in Medications and Therapies) by Bruce
Maggie, yes, we are all hoping this will be an effective treatment. It might take a couple of years......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Great deal on used C300 (in Mobility Aids) by Bruce
As Bob mentioned, the C300 is a good chair. The seat rises to a height making it easy to transfer. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids


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Kennedy's Disease Association
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