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Discussion Topic  RE: Accepting I need a wheelchair. (in Open Topic) by Bruce
Eric, glad to hear you are enjoying your new transportation. Yes, I found early on that children ar......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Accepting I need a wheelchair. (in Open Topic) by Bruce
Eric, Bob has done a nice job of outlining options and considerations. Check with your health ins......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Kennedy's Disease? (in Open Topic) by Bruce
Rob, I am not aware of anyone in R.I. There are several in Massachusetts, however. Follow this lin......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Lapband surgery (in Food and Nutrition) by Bruce
Jim, thanks for the update and for reminding everyone to make certain your doctor(s) including the a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  Genetic Home Reference Library (in Open Topic) by Bruce
The United States Library of Medicine has published the “Genetic Home Reference - Your Guide to Unde......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Lowering CPK (in Open Topic) by Bruce
Once a year for me (annual physical). At 2,000, it might be better to have it checked more often. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Lowering CPK (in Open Topic) by Bruce
Rachel, it is Bruce again. Elevated CPK is how my doctor knew something was going on with me. My CP......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Please allow ,me to introduce my self..... (in Open Topic) by Bruce
You should ask your husband's doctor for a copy of the DNA test results. You might need it someday ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Please allow ,me to introduce my self..... (in Open Topic) by Bruce
Good question. Since Kennedy's Disease (SBMA) is caused by an expansion of the CAG repeats, it is c......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Egg selection to have KD free children (in Carrier Discussion) by Bruce
Any family with the defective DNA should consider discussing the opportunities and options with a ge......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: Dutasteride; Is it working for you? (in Medications and Therapies) by Bruce
Bob, thanks for your comments. One of the important comments from the researchers who led the dutas......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Dutasteride; Is it working for you? (in Medications and Therapies) by Bruce
I was asked for additional clarification on my use of Avodart (dutasteride) in a private message. I......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Dutasteride; Is it working for you? (in Medications and Therapies) by Bruce
Dr. Fischbeck told me to not take the generic drug, but to take Avodart. Dr. Fischbeck also noted t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Albuterol (in Open Topic) by Bruce
Dorsey, no, I haven't heard of this. I would recommend that you keep track of your daily experience......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Tragic death of a friend with KD (in Open Topic) by Bruce
Eric, I left you a private message ref. the KD-GB website....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Tragic death of a friend with KD (in Open Topic) by Bruce
Eric, I'll take a look at it over the next few days and let you know. Thanks for all the work that ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Tragic death of a friend with KD (in Open Topic) by Bruce
Eric, thanks for sharing this. This is most unfortunate. Through the years I have heard many sto......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Slowing the progression of Kennedy's Disease (in Open Topic) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is Kennedy's an MND or not? (in Open Topic) by Bruce
Good to hear. Congratulations....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Accessible Bathroom (in Accesibility) by Bruce
Bob, thanks for posting this on the forum. Your experience will be helpful to all of us looking at ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility


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