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Discussion Topic  RE: CRISPR research in Muscular Dystrophy (in Open Topic) by Dan B
Cam, this is great news and an amazing piece of technology. Thanks for posting....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  STACs and Resveratrol (in Medications and Therapies) by Dan B
Bear with us, as this discussion is somewhat complex and technical. There is a notion that preventi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Apple peels and green tomatoes? (in Food and Nutrition) by Dan B
Here's a new and interesting study. Scientist have found (and I emphasize these are respected scien......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: 2 Symptoms (in Open Topic) by Dan B
Dave, is it possible to provide any details on the type of exercises prescribed by the speech therap......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 2 Symptoms (in Open Topic) by Dan B
According to WebMD.com, the following foods can trigger acid reflux or GERD: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: EMS - Electrical Muscle Stimulation? (in Exercise Discussion) by Dan B
I have seen EMS machines and they all have timers that you set when starting the exercise. I think ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: EMS - Electrical Muscle Stimulation? (in Exercise Discussion) by Dan B
Hi Bob, I asked the same question back in 2009, and didn't get much of an answer then either. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Any experience of Lyprolex (Leuproleline) (in Medications and Therapies) by Dan B
After some additional pondering, I just wanted to clarify that I didn't intend to condemn totally th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Any experience of Lyprolex (Leuproleline) (in Medications and Therapies) by Dan B
Luprolex (not lyprolex) is an overseas brand name for luprorelin (international name) or leuprolide ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Methycobal (Methycobalmine) B12 - Any experience? (in Medications and Therapies) by Dan B
Vitamin B12 is also known as cobalamin, and it is available in several forms, including methylcobala......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Avodart Justification for SBMA (in Medications and Therapies) by Dan B
Bob, you can find the results of the study "Dutasteride to Treat Spinal and Bulbar Muscular Atrophy"......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Neuropathic Itch (in Open Topic) by Dan B
Just one point about Lyrica. There is a older drug that has the generic name gabapentin and the tra......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Anyone seen a Honda Uni-Cub? (in Mobility Aids) by Dan B
That Uni-Cub is very impressive! It reminds me of a Segway, but one that's potentially usable by di......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Making my own mobility scooters (in Mobility Aids) by Dan B
At the KDA Conference, I met two men who both had a Travel Scoot ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: ReWalk from Argo Medical (in Mobility Aids) by Dan B
Here's an update on ReWalk. In June 2014, ReWalk was FDA-approved for home use, along with its prev......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Narcotics and Throat Constriction (in Medications and Therapies) by Dan B
On the KDA website, there is a page about risks of anesthesia at this link: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Curcumin / ASC-J9 and related items (in Medications and Therapies) by Dan B
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: non-alcoholic steatohepatitis (in Open Topic) by Dan B
There is a study planned at the NIH concerning fatty liver in men with SBMA. Details at ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Brugada Syndrome in SBMA - new study (in Open Topic) by Dan B
The source for this article is Neurology. 2014 May 20;82(20):1813-21 Abstracts can be found at ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  New study of liver function in Kennedy's disease (in Open Topic) by Dan B
The website clinicaltrials.gov is showing the start of a new study to look at the function of the li......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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