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Discussion Topic  Question about house modifications for accessibility (in Accesibility) by Dan B
I'm getting ready to make some changes to my house, and I'm looking for info about how to make the h......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: ICD-10 Codes for SBMA (in Open Topic) by Dan B
At my doctor's office, I noticed the medical records system uses the term "Spinal muscular atrophy" ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is pneumonia vaccine recommended for people with SBMA? (in Medications and Therapies) by Dan B
Just wanted to add some links to the website of the U.S. Centers for Disease Control (CDC) on the pn......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Burning pain in heels while sleeping (in Open Topic) by Dan B
Hi Mike, I haven't experienced the heel ache you describe. I have had a neuropathic tingling sens......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Use of cane causing shoulder weakness? (in Mobility Aids) by Dan B
Hi Mike, Your question is a good one for a doctor or physical therapist, which I am not, but I'll ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Service Dog (in Mobility Aids) by Dan B
Hi Jim, I read the blog, and I think it is a very interesting idea. One thing I'm not clear on, t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Consult (in Open Topic) by Dan B
There is a preparation of curcumin and piperine from a reputable manufacturer. It can be found at t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Neuropathic Itch (in Open Topic) by Dan B
Hi Eric, Concerning the reason why it happens: It is caused by KD. We spend so much time talking ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Neuropathic Itch (in Open Topic) by Dan B
The medication gabapentin can be used to relieve itching or tingling associated with neuropathy. If......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: BOTOX (in Open Topic) by Dan B
Hugh, according to ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Newborn screening for NMD (in Open Topic) by Dan B
Okay, I'll play "devil's advocate" for a minute...in the article she writes about testing for 31 cor......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Melatonin and AR in SBMA (in Food and Nutrition) by Dan B
Melatonin has now been shown to have a protective effect on neurons in mouse models of both ALS (Lou......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Melatonin study for ALS (in Medications and Therapies) by Dan B
Hi C.D., There is a discussion thread on melatonin at ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Curcumin / ASC-J9 and related items (in Medications and Therapies) by Dan B
Here's a research update. Curcumin was found to be effective in a mouse model of CMT disease, which......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Lowering CPK (in Open Topic) by Dan B
Hi Rachel, If your husband is interested in exercise, you should tell him to look into the ongoin......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Please allow ,me to introduce my self..... (in Open Topic) by Dan B
For the reasons Bruce mentioned, you absolutely need a copy of the test results and you should insis......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Kennedy's Disease? (in Open Topic) by Dan B
Hi Rob, There is no need to worry over whether you have KD or not. There is a simple blood test th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Electrical stimulation for dysphagia (in Open Topic) by Dan B
Hi Randy, I haven't tried it myself. I am managing fairly well with the swallowing exercises descr......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Quinine Sulphate. (in Medications & Therapies) by Dan B
It may interest you to know that the U.S. FDA has banned the use of quinine for leg cramps, on the g......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications & Therapies

Discussion Topic  RE: Medic Alert (in Open Topic) by Dan B
Hi BC, Check out the KD Emergency Medical Card at this link: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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