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Discussion Topic  RE: Pillow recommendations? (in Open Topic) by Bob Heitzman
I use two - a firm thin traditional for sleeping on my back, and a "side sleeper." The side sleeper ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bob Heitzman
Probably not applicable to SBMA'ers. It might be useful for leg cramps which seems to be a phase of ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bob Heitzman
It will help if you start considering the spasms as annoying and not scary. You can't fight the spas......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bob Heitzman
Unfortunately, there isn't a single word. Perhaps a phrase may be needed e.g. "appears to be chockin......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bob Heitzman
Note that a laryngospasm is not choking - different pipes....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Jaw locking (in Open Topic) by Bob Heitzman
Some of us have had jaw problems that may have been related to sleep position. In my case, I was sle......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: facial muscle weakness (in Open Topic) by Bob Heitzman
I had jaw pain and found if I made sure to support my jaw while sleeping on my side it prevented the......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: neck collar, smart exercise with diagram/photos (in Open Topic) by Bob Heitzman
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Marijuana CBD vs. Opioids (in Medications and Therapies) by Bob Heitzman
Sounds like it might be time to shop around for another doctor. The reasoning/threat sounds more ant......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Marijuana CBD vs. Opioids (in Medications and Therapies) by Bob Heitzman
Are you sure about the clinic's position? Seems like they should be willing to explore alternatives ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Alpt of pain in thighs (in Open Topic) by Bob Heitzman
I didn't see mention in your posts about getting the SBMA genetic test. Is that in progress?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Laryngospasm Article (in Discussion of Papers) by Bob Heitzman
My experience is about the same. Having confidence from previous events and knowing it will end even......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Laryngospasm Article (in Discussion of Papers) by Bob Heitzman
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Study: Systemic Delivery of MicroRNA (in Discussion of Papers) by Bob Heitzman
See Bruce's blog for some interesting research: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: Metformin for Type 2 Diabetes (in Medications and Therapies) by Bob Heitzman
Thanks Todd. I had to use meds + diet to get me down from 7+, but low carb diet is all I'm using tod......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Metformin for Type 2 Diabetes (in Medications and Therapies) by Bob Heitzman
I didn't experience any side effects I could definitely tie to Metformin. I took it for several year......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Wondering about this (in Open Topic) by Bob Heitzman
Your sister's progression is much faster than my experience with SBMA. I wouldn't let up on finding......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Power Chairs (in Mobility Aids) by Bob Heitzman
Bruce has come up with another excellent post on ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Wheelchair Survey - $25 gift card (in Open Topic) by Bob Heitzman
Earn $25 Amazon gift card. They say they don't sell your info, but they must sell something. Probabl......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Gene level therapy? (in Open Topic) by Bob Heitzman
A recent ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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