Home Login/Join My Space Help Members Forums Search Today's Active Topics New Since Last Visit
Kennedys Disease Association Homepage    Kennedys Disease Community    Forums  Hop To Forum Categories  General Discussion  Hop To Forums  Open Topic    Twitching and arm and leg weakness

Moderators: Bruce, SusanneW
Go
New
Find
Notify
Tools
Reply
  
Twitching and arm and leg weakness
 Login/Join
 
<Greg Castro>
posted   Reply With QuoteReport This Post  
I was diagnosed with KD in 2011 after a DNA analysis. Went to a specialist because I was experiencing twitching in my neck and arm. I also have my right leg weak unable to lift and my left arm is weak as well. I need to walk with a cane to balance myself or might fall. Do any of you have similar situations?
Registered: 08-02-2009
Posts: 204
posted   Hide PostReply With QuoteReport This Post  
Hello Greg. Twitching in the muscles is called fasciculation and it is a symptom of KD. Weakness in the muscles is also a common symptom.

This article gives detailed information on most of the symptoms as well as the age of onset. It is well worth reading. http://academic.oup.com/brain/...le/129/6/1446/300025
<Greg Castro>
posted   Reply With QuoteReport This Post  
Thanks Dan, is there anything I can do or take to slow or stop the twitching?
Registered: 08-02-2009
Posts: 204
posted   Hide PostReply With QuoteReport This Post  
I don't know of any treatment for fasciculations, but you should talk to your doctor about that.

Several people on this board have reported that their fasciculations have reduced or disappeared over time.


For my part I have found that a diet high in sodium makes the fasciculations worse, but I have no idea if that would work for anyone else.
<Greg Castro>
posted   Reply With QuoteReport This Post  
Thanks Dan, useful information
  Powered by Social Strata  
 

Kennedys Disease Association Homepage    Kennedys Disease Community    Forums  Hop To Forum Categories  General Discussion  Hop To Forums  Open Topic    Twitching and arm and leg weakness

Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org