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Terry Waite
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Picture of Bruce
Registered: 09-28-2005
Posts: 654
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Lou Tudor, the president of the KDA posted this on Facebook yesterday.

We are deeply saddened to hear that Terry Waite has suffered a massive stroke today and is on life support.

Terry is one of the founders of the KDA.
May God bless Terry and his family.
KDA Facebook
Picture of Bruce
Registered: 09-28-2005
Posts: 654
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Lou Tudor posted the following message last night:

Terry Waite has left this world a better place. We all grieve to know he is no longer with us, but celebrate his life of bringing us all together to find a cure for KD.
May he rest in peace in Gods arms.
+++++++++++++

My thoughts and prayers go out to his entire family.
Location: rochdale. england.
Registered: 03-28-2011
Posts: 41
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Beautifully stated Lou. I second your words wholeheartedly. A very sad day indeed. My thoughts are with Susanne and his family.Without their efforts we would not be here today.
Graham.
Registered: 10-22-2005
Posts: 142
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I was wondering how he was doing; my condolences to his family. When I first started experiencing the terror of laryngeal spasms, Terry was the one who explained what was going on, and generally eased my mind. While I never met the man in person, I owe him a debt of gratitude.
Picture of Bruce
Registered: 09-28-2005
Posts: 654
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Terry was the reason I joined the KDA. I found him online and we communicated several times via email. He encouraged me to join and the rest is history. Through the years, Susanne was the spark-plug and Terry was the anchor for maintaining and growing the KDA. I know it can happen at anytime, but 56 is just too young.
Picture of ToddAllen
Location: Chicago, IL
Registered: 01-18-2008
Posts: 205
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I'm very saddened to learn of Terry's death. He and Susanne have done so much to help speed the day when there is treatment for our condition and I wish he would be here to share in our joy when that day comes.

This message has been edited. Last edited by: ToddAllen,
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Kennedy's Disease Association
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