Home Login/Join My Space Help Members Forums Search Today's Active Topics New Since Last Visit

Moderators: Bruce, SusanneW
Go
New
Find
Notify
Tools
Reply
  
Newly Dx
 Login/Join
 
Registered: 10-08-2011
Posts: 1
posted   Reply With QuoteReport This Post  
Hello from Canada. I just recevied diagnosis of Kennedy`s. I was reading posts of other people having problems with stairs. I try to avoid stairs alltogether if possible. I use a walker.
Glad to find this fourm as an outlet.
Location: south carolina
Registered: 10-09-2011
Posts: 20
posted   Hide PostReply With QuoteReport This Post  
Hi I am in the same boat just diagnosed I am 43 able to still get around well can climb stairs and all. But noticing Atrophy in right side of neck and left arm I am really scared by all of this, my anxiety level is through the roof was originally told it was ALS till I went to the Mayo clinic and they did the DNA test I have 44 repeats, and no one in my family is familiar with this happening to anyone else.

How old are you? If you do not mind me asking Homer.

Truly scared here and how do some of you guys deal with the anxiety?
  Powered by Social Strata  
 


Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org