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Discussion Topic  Conference updates from November? (in Open Topic) by raxel19
Hi there, It's great to see the presentations from the conference in November up on the site. Howe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  It's a scooter, no it's a chair, no ... (in Accesibility) by Bruce
I received the following email today. The eFoldi is an interesting adaption of the carry-on luggage.......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  Anyone in the San Francisco Bay Area living with KD? (in Open Topic) by Ralph
Hello, My name is Ralph and I have been recently been diagnosed with KD. I have been experiencing ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Hotshot (in Food and Nutrition) by Linda D
There is a product on the market called Hotshot that is advertised as 'scientifically proven to prev......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  medicación (in Spanish Discussion) by Javier Bayona
Los enfermos de Kennedy de España estamos sin organización. Es hora de crear una página web como ex......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spanish Discussion

Discussion Topic  SBMA Typ Kennedy (in German Discussion) by bluefo
Hallo zusammen. Nach meiner Diagnosestellung im Mai 2016 bin ich nach vergeblicher Suche im deutschs......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > German Discussion

Discussion Topic  Healing when going beyond the limit (in Open Topic) by KDA_2011
Hi all, New at this forum! I got my diagnosis in 2011 at age 43. My life had more or less involved......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Recommended Book (in Food and Nutrition) by Linda D
Greetings. I am a recently diagnosed carrier with symptoms (you can see my recent posts under "wome......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  Medical treatment required for laryngospasm? (in Open Topic) by Cam
I read Eric's post in the UK forum, regarding his having emergency medical treatment for laryngospas......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Walking on the beach/sand (in Mobility Aids) by raxel19
Hi everyone, This is the first summer that my husband hasn't been able to walk to the ocean as the ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Does anyone have experience with seated Segways? (in Mobility Aids) by Cam
As a rural guy, I've been looking for a personal mobility device that is both relatively portable (a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Women Carriers and Symptoms (in Carrier Discussion) by Linda D
I am a 65 year old female recently diagnosed as a carrier. I was tested because I was having some o......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  Quinine Sulphate. (in Medications & Therapies) by Eric
When I was first diagnosed with KD I was prescribed Quinine Sulphate to relieve leg cramps. It didn......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications & Therapies

Discussion Topic  Knowing when to slow down (in Open Topic) by Chinup
Hi. I am new to these forums and have read previous posts which have been very helpful. A little bi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Husband recent diagnosis of KD (in Spouses & Significant Others) by 2DanceAgain
Hello, My husband's diagnosis of KD was just confirmed with the genetic testing. He originally was ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  hot baths? (in Medications and Therapies) by ToddAllen
Between 2000 and 2010 there was quite a bit of research and excitement regarding heat shock proteins......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  full length research papers (in Open Topic) by ToddAllen
Here's a story about a controversial means to access full length papers ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  My father (in Open Topic) by anna M
I´m very sad to tell that my father Sören Mannheimer left us this morning due to, and after, a twent......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Facebook page KD SPAIN (in Spanish Discussion) by Javier Bayona
ENFERMEDAD DE KENNEDY EN ESPAÑA ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spanish Discussion


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Kennedy's Disease Association
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