Search Results

Husband has pain in his heels (in Open Topic) by Marsia Kotte Does anyone have pain in their heels? Do you have any remedies for it?... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Coping (in Open Topic) by Nick0651 Hi everyone, I’m new here. My name is Nick, and I’m newly diagnosed with Kennedy’s. A little back...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic A few questions (in Open Topic) by pianokeys Hello, I have read that some people with Kennedys disease sometimes get misdiagnosed with ALS. How c...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic I don't think I get it (in Open Topic) by lmiller My dad had an ALS diagnosis for almost 2 yrs and he called to say that he has a Kennedy's diagnosis ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Arginine as potential disease-modifying drug (in Discussion of Papers) by Ben ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers Pillow recommendations? (in Open Topic) by Cam I'm having difficulty supporting my neck comfortably at night; any recommendations on pillows that w...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Question about CCRCs and Lifecare Communities (in Open Topic) by Dan B Has any had the experience of applying to a Continuing Care Retirement Community (CCRC) or Lifecare ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic laryngospasm (dry Drowning) Choking (in Open Topic) by KDA Adminstrator I found a good site and explanation for this common symptom that we with KD have often. ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic First use of CRISPR to edit genes in the human body (in Open Topic) by Dan B This is exciting: the news story reports the first use of CRISPR to edit genes while still inside th...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Jaw locking (in Open Topic) by Lolo My husband is having issues with what he is calling his jaw locking making is very difficult and pai...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Developing an antisense therapy approach for Kennedy’s disease (in Open Topic) by Jin I entered the Kennedy Disease Association's Facebook and I have one document that is posted on Febru...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Researchers discover how cells clear misfolded proteins from tissues (in Discussion of Papers) by Cam ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers facial muscle weakness (in Open Topic) by jahradental does anyone here have signs and symptoms of facial muscle weakness and been to any dental hospital f...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic neck collar, smart exercise with diagram/photos (in Open Topic) by Christina Hi, My dad was diagnosed with KD late last year at age 76. His main symptom is head drop syndrome ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Successful use of gene scissors to shorten defective gene (in Open Topic) by Cam ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Vibration? (in Open Topic) by Brad0608 Hey guys how is everyone doing was wondering started feeling vibration in left leg I guess my questi...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Fasting and autophagy (in Open Topic) by Dan B There was a discussion at the KD group on FB about autophagy stimulated by fasting, and its role in ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic KD on Reddit (in Open Topic) by Ben Hi all! After realizing I'm missing out on discussions on Facebook and that perhaps this forum doe...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic New on board (in Open Topic) by Hunor Heya Guys ! Iam Hunor from Hungary,my symptoms started since one year ago with calf fasciculation, ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Merry Christmas and a Happy New Year! (in Open Topic) by Cam To all the forum.... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic CRISPR improving all the time. (in Open Topic) by Cam ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Foods that make me choke (in Food and Nutrition) by Stan We got on the subject of foods and choking during a recent chat and I was asked to put my list on th...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition Feeding tube (in Open Topic) by Cam Pulmonologist is making noises about a feeding tube. Anyone have experience they care to share? (pm...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Simple And Effective Remedies Weight Loss (in Food and Nutrition) by Misty Jhones There are many Reasons for being overweight as stress, genetics, medical problems, quitting smoking,...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition HBM or HMB Supplements to combat muscle breakdown / catabolism? (in Medications and Therapies) by JR in Mississauga I've been using the Ensure Enlive product with HBM (Calcium Hydroxy-beta-methylbutyrate) - not to be...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies Muscle frenzy (in Open Topic) by Brad0608 Hey guys been awhile was curious what you can take or do to calm muscle down recently been getting w...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Marijuana CBD vs. Opioids (in Medications and Therapies) by Greg Castro I’m taking oxycodone 10mg for pain and I would like to stop. I understand it’s a touchy subject. My ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies LIberty Cane (in Mobility Aids) by Dan B Does anyone know where to buy a Liberty Cane that was sold formerly by John Coakley, Sr.? I have tr...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids Twitching and arm and leg weakness (in Open Topic) by Greg Castro I was diagnosed with KD in 2011 after a DNA analysis. Went to a specialist because I was experiencin...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Swallowing and Phlegm (in Open Topic) by Shepster48 Hi Me again. Still no diagnosis. The rheumatologist has now transferred me to see a neurologist. Ho...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic SBMA and emotional outbursts (PBA, IEED) -- need your help! (in Open Topic) by Dan B I am posting today to ask for your help. I need to know if anyone has experienced unexplained emoti...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Nrf2 articles (in Discussion of Papers) by Mickle Spiffy Nrf2 articles have popped up this year. I haven't looked too deep yet. Should I? ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers Coenzyme Q10 (in Medications and Therapies) by Dan B At the 2008 KDA conference, Dr. K. Fischbeck mentioned that Coenzyme Q10 (known as CoQ10 for short) ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies Selbsthilfegruppe, Facebook, Private Webseiten (in German Discussion) by bluefo Mittlerweile haben sich viele Betroffene, ob Patienten oder deren Partner in den verschiedenen sozia...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > German Discussion After decades of uninterrupted decline I'm making rapid gains (in Open Topic) by ToddAllen Many of the research papers published on KD that have shown benefits are investigations of parts of ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Alpt of pain in thighs (in Open Topic) by Shepster48 Hi Me again. No diagnosis yet. Ive read alot about kennedys disease and how it is very slow progre...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Exercises for early diagnosis (in Exercise Discussion) by Shepster48 Hi Im currently awaiting diagnosis, i see the specialist on the 22nd January. I am unsure where i ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion Awaiting diagnosis (in Open Topic) by Shepster48 Hi I hope it’s ok to post with no confirmed diagnosis. I’m 48, worried and from the UK. I have had...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Exercise (in Exercise Discussion) by Dan LADOUCEUR My name is Dan and I am 43 years old. Last year I had a DNA test and was diagnosed with Kennedy's a...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion Laryngospasm Article (in Discussion of Papers) by Bob Heitzman ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers Question about symptoms coming and going (in Open Topic) by Dan B I have a question about KD symptoms coming and going. All of the scientific article and websites ab...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Is there a place to donate your body for KD research after death? (in Open Topic) by Lolo My husband and I have been discussing what to do with each other upon our deaths. We both want crema...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Lifespan with Kennedy's Disease (in Spouses & Significant Others) by DB Not to be morbid, but I would like to discuss death. Or at least request information from others wh...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others Still waiting for results (in Open Topic) by Reed&sam He is 28 years old. Very weak compared to a year ago. Be is having trouble walking and now showing s...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Triggers (in Open Topic) by Mickle Spiffy I've been diagnosed for over a year. (But suffered for many.) I'm fairly early in developing symptom...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic any daughters have MS? (in Carrier Discussion) by Cathy My father has Kennedy's Disease and I had lots of cramping issues and thought they may be related to...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion Study: Systemic Delivery of MicroRNA (in Discussion of Papers) by Bob Heitzman See Bruce's blog for some interesting research: ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers General introduction and health query (in Open Topic) by Lytton Hi all. I thought I’d post a bit of an introduction before I post any specific queries or discussion...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Swallowing disorder (in Open Topic) by Lori Ryan Hi KD world does anyone here have Achalaisa? I am a female carrier and developed this a few years a...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Metformin for Type 2 Diabetes (in Medications and Therapies) by Mike Murphy I have been diagnosed with Type 2 Diabetes (seems to be a high occurrence with KD). My doctor is pre...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies	» Refine Search » New Search

Husband has pain in his heels (in Open Topic) by Marsia Kotte
Does anyone have pain in their heels? Do you have any remedies for it?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Coping (in Open Topic) by Nick0651
Hi everyone, I’m new here. My name is Nick, and I’m newly diagnosed with Kennedy’s. A little back......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

A few questions (in Open Topic) by pianokeys
Hello, I have read that some people with Kennedys disease sometimes get misdiagnosed with ALS. How c......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

I don't think I get it (in Open Topic) by lmiller
My dad had an ALS diagnosis for almost 2 yrs and he called to say that he has a Kennedy's diagnosis ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Arginine as potential disease-modifying drug (in Discussion of Papers) by Ben
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Pillow recommendations? (in Open Topic) by Cam
I'm having difficulty supporting my neck comfortably at night; any recommendations on pillows that w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Question about CCRCs and Lifecare Communities (in Open Topic) by Dan B
Has any had the experience of applying to a Continuing Care Retirement Community (CCRC) or Lifecare ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

laryngospasm (dry Drowning) Choking (in Open Topic) by KDA Adminstrator
I found a good site and explanation for this common symptom that we with KD have often. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

First use of CRISPR to edit genes in the human body (in Open Topic) by Dan B
This is exciting: the news story reports the first use of CRISPR to edit genes while still inside th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Jaw locking (in Open Topic) by Lolo
My husband is having issues with what he is calling his jaw locking making is very difficult and pai......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Developing an antisense therapy approach for Kennedy’s disease (in Open Topic) by Jin
I entered the Kennedy Disease Association's Facebook and I have one document that is posted on Febru......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Researchers discover how cells clear misfolded proteins from tissues (in Discussion of Papers) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

facial muscle weakness (in Open Topic) by jahradental
does anyone here have signs and symptoms of facial muscle weakness and been to any dental hospital f......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

neck collar, smart exercise with diagram/photos (in Open Topic) by Christina
Hi, My dad was diagnosed with KD late last year at age 76. His main symptom is head drop syndrome ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Successful use of gene scissors to shorten defective gene (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Vibration? (in Open Topic) by Brad0608
Hey guys how is everyone doing was wondering started feeling vibration in left leg I guess my questi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Fasting and autophagy (in Open Topic) by Dan B
There was a discussion at the KD group on FB about autophagy stimulated by fasting, and its role in ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

KD on Reddit (in Open Topic) by Ben
Hi all! After realizing I'm missing out on discussions on Facebook and that perhaps this forum doe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

New on board (in Open Topic) by Hunor
Heya Guys ! Iam Hunor from Hungary,my symptoms started since one year ago with calf fasciculation, ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Merry Christmas and a Happy New Year! (in Open Topic) by Cam
To all the forum....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

CRISPR improving all the time. (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Foods that make me choke (in Food and Nutrition) by Stan
We got on the subject of foods and choking during a recent chat and I was asked to put my list on th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Feeding tube (in Open Topic) by Cam
Pulmonologist is making noises about a feeding tube. Anyone have experience they care to share? (pm......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Simple And Effective Remedies Weight Loss (in Food and Nutrition) by Misty Jhones
There are many Reasons for being overweight as stress, genetics, medical problems, quitting smoking,......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

HBM or HMB Supplements to combat muscle breakdown / catabolism? (in Medications and Therapies) by JR in Mississauga
I've been using the Ensure Enlive product with HBM (Calcium Hydroxy-beta-methylbutyrate) - not to be......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Muscle frenzy (in Open Topic) by Brad0608
Hey guys been awhile was curious what you can take or do to calm muscle down recently been getting w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Marijuana CBD vs. Opioids (in Medications and Therapies) by Greg Castro
I’m taking oxycodone 10mg for pain and I would like to stop. I understand it’s a touchy subject. My ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

LIberty Cane (in Mobility Aids) by Dan B
Does anyone know where to buy a Liberty Cane that was sold formerly by John Coakley, Sr.? I have tr......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Twitching and arm and leg weakness (in Open Topic) by Greg Castro
I was diagnosed with KD in 2011 after a DNA analysis. Went to a specialist because I was experiencin......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Swallowing and Phlegm (in Open Topic) by Shepster48
Hi Me again. Still no diagnosis. The rheumatologist has now transferred me to see a neurologist. Ho......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

SBMA and emotional outbursts (PBA, IEED) -- need your help! (in Open Topic) by Dan B
I am posting today to ask for your help. I need to know if anyone has experienced unexplained emoti......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Nrf2 articles (in Discussion of Papers) by Mickle Spiffy
Nrf2 articles have popped up this year. I haven't looked too deep yet. Should I? ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Coenzyme Q10 (in Medications and Therapies) by Dan B
At the 2008 KDA conference, Dr. K. Fischbeck mentioned that Coenzyme Q10 (known as CoQ10 for short) ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Selbsthilfegruppe, Facebook, Private Webseiten (in German Discussion) by bluefo
Mittlerweile haben sich viele Betroffene, ob Patienten oder deren Partner in den verschiedenen sozia......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > German Discussion

After decades of uninterrupted decline I'm making rapid gains (in Open Topic) by ToddAllen
Many of the research papers published on KD that have shown benefits are investigations of parts of ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Alpt of pain in thighs (in Open Topic) by Shepster48
Hi Me again. No diagnosis yet. Ive read alot about kennedys disease and how it is very slow progre......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Exercises for early diagnosis (in Exercise Discussion) by Shepster48
Hi Im currently awaiting diagnosis, i see the specialist on the 22nd January. I am unsure where i ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Awaiting diagnosis (in Open Topic) by Shepster48
Hi I hope it’s ok to post with no confirmed diagnosis. I’m 48, worried and from the UK. I have had......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Exercise (in Exercise Discussion) by Dan LADOUCEUR
My name is Dan and I am 43 years old. Last year I had a DNA test and was diagnosed with Kennedy's a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Laryngospasm Article (in Discussion of Papers) by Bob Heitzman
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Question about symptoms coming and going (in Open Topic) by Dan B
I have a question about KD symptoms coming and going. All of the scientific article and websites ab......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Is there a place to donate your body for KD research after death? (in Open Topic) by Lolo
My husband and I have been discussing what to do with each other upon our deaths. We both want crema......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Lifespan with Kennedy's Disease (in Spouses & Significant Others) by DB
Not to be morbid, but I would like to discuss death. Or at least request information from others wh......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Still waiting for results (in Open Topic) by Reed&sam
He is 28 years old. Very weak compared to a year ago. Be is having trouble walking and now showing s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Triggers (in Open Topic) by Mickle Spiffy
I've been diagnosed for over a year. (But suffered for many.) I'm fairly early in developing symptom......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

any daughters have MS? (in Carrier Discussion) by Cathy
My father has Kennedy's Disease and I had lots of cramping issues and thought they may be related to......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Study: Systemic Delivery of MicroRNA (in Discussion of Papers) by Bob Heitzman
See Bruce's blog for some interesting research: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

General introduction and health query (in Open Topic) by Lytton
Hi all. I thought I’d post a bit of an introduction before I post any specific queries or discussion......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Swallowing disorder (in Open Topic) by Lori Ryan
Hi KD world does anyone here have Achalaisa? I am a female carrier and developed this a few years a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Metformin for Type 2 Diabetes (in Medications and Therapies) by Mike Murphy
I have been diagnosed with Type 2 Diabetes (seems to be a high occurrence with KD). My doctor is pre......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

» Refine Search
» New Search

‹ Previous | Next ›

Please Wait. Your request is being processed...

Kennedys Disease Association Homepage

Kennedys Disease Community

Forums

Search Results

Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org

	View $GS_USERNAME's Public Profile
	Add $GS_USERNAME to my Buddies
	Add $GS_USERNAME to my Ignore ListRemove $GS_USERNAME from my Ignore List
	Invite $GS_USERNAME to a Private Topic
	View Recent Posts by $GS_USERNAME
	Notify me of New Posts by $GS_USERNAME