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Discussion Topic  RE: Coenzyme Q10 (in Medications and Therapies) by Bruce
Fortunately, I have not had cramps in several years. Perhaps I don't have enough muscle left to cram......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Exercises for early diagnosis (in Exercise Discussion) by Bruce
A physical therapist with experience with ALS patients can help design a program for your capabiliti......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Exercise (in Exercise Discussion) by Bruce
Cold weather bothers me and I find I am weaker. Minor cramping is something that happens. Major cram......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Exercise (in Exercise Discussion) by Bruce
Eileen, yes, at times I still have neck cramps. Not as bad as when I was younger, however. The fasci......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Question about symptoms coming and going (in Open Topic) by Bruce
Yes, I believe many of us have had similar experiences. For exaple, I experienced severe cramps earl......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Bruce
Lolo, I am sorry to hear of Bob's fall. I fell several years ago and broke my tibia and fibula. It t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Bruce
Sorry, I have not done it, so I cannot answer the question. Your doctor should be able to help answe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Bruce
The KDA website has an information guide to help those interested to learn more about the subject. T......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bruce
Arthur, it is one of those things that you never know if it will or won't. I error on the cautious s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bruce
Spicy foods, vinegar, etc. can set it off for me....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: After decades of uninterrupted decline I'm making rapid gains (in Open Topic) by Bruce
Adding onto Todd's comment. For me, I go through periods of stability and then have a "slide." It is......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Vibration? (in Open Topic) by Bruce
Sure, that helps a lot. Yes, that sounds like a normal reaction after the trunk muscles (hips, quads......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Vibration? (in Open Topic) by Bruce
Brad, is this vibration like a fasciculation, or a tremor if you have your leg in a certain position......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Swallowing disorder (in Open Topic) by Bruce
Lori, many of us with KD experience swallowing difficulties - especially later in life. I have not s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Swallowing and Choking Issues (in Open Topic) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Knees Buckling (in Exercise Discussion) by Bruce
You are not alone. We are all a family living with Kennedy's Disease. Take care and stay upright....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Knees Buckling (in Exercise Discussion) by Bruce
Standing on my toes is something I cannot do. That is why I do the heel raise to use the forward foo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Knees Buckling (in Exercise Discussion) by Bruce
Work your quads every day. Don't overdue it, but exercise them daily. Stand at a counter or some typ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Products (in Food and Nutrition) by Bruce
That is a good question for your doctor. I do not take creatine....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Yoga and KDA (in Exercise Discussion) by Bruce
My neurologist introduced me to the "70% rule" many years ago when we discussed my exercise program.......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion


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Kennedy's Disease Association
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