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Discussion Topic  RE: Generalized Pain/Just don't feel good most of the time. (in Open Topic) by ToddAllen
Pierre, I felt similar in my 40s. I was trying to adapt to having an untreatable progressive diseas......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Mestinon or pyridostigmine (in Medications and Therapies) by ToddAllen
Dan, nice summary....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Knee or hip replacements? (in Medications and Therapies) by ToddAllen
Robert, excellent to hear you have bounced back from breaking both hips and now have a vigorous exer......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Knee or hip replacements? (in Medications and Therapies) by ToddAllen
Dan has good points, especially his suggestion to post your question on one or more of the KD facebo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Esophageal Dilation (in Open Topic) by ToddAllen
Pierre, I've also had trouble with choking. Years ago it was much worse but rarely bothers me now. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Mask wearing Covid question (in Open Topic) by ToddAllen
Masks can interfere with breathing. Because of my weakness walking is challenging causing heavier b......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: My legs are getting very week. Any advice please? (in Open Topic) by ToddAllen
David, I should be asking you for advice as you are doing very well to still be walking and driving ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen
I found this article which may explain my elevated sex hormones. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen
I got blood work done last week. I was roughly 16 hours fasted at an 8 AM blood draw so it is a goo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen
Istvan, yes metformin is definitely interesting. Mouse studies showing improved lifespan on metform......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen
Istvan, there are numerous papers on the therapeutic effects of IGF-1 in KD mouse models and tissue ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen
Istvan, thanks for posting this study. I checked on sci-hub for the full article but it isn’t avai......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: Are there any news about new clinical trials or treatments? (in Open Topic) by ToddAllen
I look for new papers using Pubmed and Google Scholar. For papers behind paywalls I look for them o......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Neurologist Visits (in Medications and Therapies) by ToddAllen
I think my experience is unusual in that I have a neurologist who has done beneficial things for me ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Genistein promotes degradation of mutant androgen receptor (in Discussion of Papers) by ToddAllen
I saw that paper but I never tried extracted genistein in supplement form. When possible I go for f......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: Status of this study? (in Medications and Therapies) by ToddAllen
I think it was stated at the KDA conference last November they have a pharmaceutical development com......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Lap Swimming (in Exercise Discussion) by ToddAllen
Hi Jon, welcome to the forums. I'm jealous of your swimming, my local pools have been closed since ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Euthanasia (in Open Topic) by ToddAllen
When I was declining rapidly I wondered often about when it would become intolerable. I was impress......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Assessment (in Open Topic) by ToddAllen
My guess based on your low testosterone is you don't have Kennedy's disease. KD is a mutation of th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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