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RE: Genistein promotes degradation of mutant androgen receptor (in Discussion of Papers) by ToddAllen I saw that paper but I never tried extracted genistein in supplement form. When possible I go for f...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers Genistein promotes degradation of mutant androgen receptor (in Discussion of Papers) by Dan B Here's an old paper, but one that has not been commented on in this forum, as far as I know. A 2013...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen Istvan, there are numerous papers on the therapeutic effects of IGF-1 in KD mouse models and tissue ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: A new leuprorelin study has published (in Discussion of Papers) by Istvan Thank you, Dan and Todd, for your important and valuable comments. I didn’t notice the publication ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: A new leuprorelin study has published (in Discussion of Papers) by Dan B The complete text of the article is available at this link. ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: A new leuprorelin study has published (in Discussion of Papers) by Dan B Istvan wrote: ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen Istvan, thanks for posting this study. I checked on sci-hub for the full article but it isn’t avai...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers A new leuprorelin study has published (in Discussion of Papers) by Istvan A new leuprorelin study has published. Here is the abstract and reference. ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers Two things I should have done earlier (in Medications and Therapies) by Bob Heitzman Colostomy and Intermittent self-catheterization (ISC.) I know, yuck! As my symptoms progressed it...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Neurologist Visits (in Medications and Therapies) by Bob Heitzman Having a neurologist on your medical team is important IMO. Since SBMA is a neuromuscular disorder i...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Neurologist Visits (in Medications and Therapies) by Ronald M. Its certainly an individual choice. I use to go every 6 months to my neurologist and then went to ev...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Neurologist Visits (in Medications and Therapies) by Mike Murphy My neurologist has me see her only once a year and has been that way for the last 15 years. Since th...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies Neurologist Visits (in Medications and Therapies) by JonH Hi, I was curious how often the general population of KD patients meet with their neurologists eac...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Status of this study? (in Medications and Therapies) by JonH Thanks Todd & Dan for the feedback. Guess I'll keep my fingers crossed but have little hope since th...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Status of this study? (in Medications and Therapies) by Dan B Hi Jon. The study is complete and the results of the study have been published. The abstract is at...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Status of this study? (in Medications and Therapies) by ToddAllen I think it was stated at the KDA conference last November they have a pharmaceutical development com...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies Status of this study? (in Medications and Therapies) by JonH Has anybody heard anything further regarding this study? It seemed so promising but then..nothing b...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Lap Swimming (in Exercise Discussion) by ToddAllen Hi Jon, welcome to the forums. I'm jealous of your swimming, my local pools have been closed since ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion Lap Swimming (in Exercise Discussion) by JonH Hi, I started experiencing KD symptoms in 2014 but it took 5 years and thousands of dollars in copa...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion RE: Assessment (in Open Topic) by LawrenceJR Thank you both for the informative responses. I will take your inputs and they will help me formulat...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Assessment (in Open Topic) by Bob Heitzman Note that high ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Assessment (in Open Topic) by Bob Heitzman A common strong indicator for SBMA is if you have relatives with similar symptoms on your mother's s...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Assessment (in Open Topic) by ToddAllen My guess based on your low testosterone is you don't have Kennedy's disease. KD is a mutation of th...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Assessment (in Open Topic) by LawrenceJR Recently, I was admitted to the hospital for observation after experiencing tightness in my chest an...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Euthanasia (in Open Topic) by ToddAllen When I was declining rapidly I wondered often about when it would become intolerable. I was impress...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Euthanasia (in Open Topic) by Bob Heitzman Prayer!!... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Euthanasia (in Open Topic) by goodlead What plans does anyone have for when the quality of life is so diminished that there's no point in g...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Merry Christmas and a Happy New Year! (in Open Topic) by Cam To everyone on the forum.... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Suspect I have KD, but some symptoms don't match... (in Open Topic) by ToddAllen Here's a Black Friday sale on whole genome sequencing for $149 ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Suspect I have KD, but some symptoms don't match... (in Open Topic) by John* Thank you Bob for the feedback, I really appreciate it.... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Suspect I have KD, but some symptoms don't match... (in Open Topic) by Bob Heitzman If anyone up your mother's side of the family tree has similar problems that would be a strong point...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Suspect I have KD, but some symptoms don't match... (in Open Topic) by John* I've been experiencing a myriad of neuro symptoms, which as you might expect, has prompted hours of ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Concerned - Seeking Answers (in Open Topic) by Bob Heitzman Some of your symptoms are consistent with KD, but asymmetrical muscular atrophy at 22 is not (as far...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Concerned - Seeking Answers (in Open Topic) by ToddAllen Hi Evan, it's fairly easy to diagnose Kennedy's with a very high degree of certainty with genetic te...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Concerned - Seeking Answers (in Open Topic) by Evan I can do the same amount of push-ups that I could 4 years ago, so that's positive. Although I defini...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Concerned - Seeking Answers (in Open Topic) by Evan I am currently a 22 year old male. It certainly doesn't help having massive health anxiety, but I ha...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: sarms (in Open Topic) by ToddAllen Sounds like your circumstances are limiting and many of the things I've found helpful such as exerci...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: sarms (in Open Topic) by Mike Gill thank you Todd. Being in a nursing home at 65 is trying sometimes. Just pulling for straws to help w...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: sarms (in Open Topic) by ToddAllen Mike, I completely understand the feeling. About 5 years ago I was declining brutally fast and was ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: sarms (in Open Topic) by Mike Gill Thank you. In my stage of decline I am willing to try anything that might be helpful.... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: sarms (in Open Topic) by ToddAllen There is an ongoing effort to develop a SARM with beneficial effects for KD. There are many SARMs co...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic sarms (in Open Topic) by Mike Gill I have been reading about sarms and how it might help people with kD . My question is, has anyone tr...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Wondering about this (in Open Topic) by ToddAllen Lilly, I wish I knew the source of the lead poisoning but I doubt I ever will. We found moderate am...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Wondering about this (in Open Topic) by Lilly Thank you, ToddAllen. I am glad that you figured out you had complications with lead poisoning.....w...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Wondering about this (in Open Topic) by ToddAllen Hi Lilly, I'm sorry to hear your sister's condition is progressing quickly. Considering how rare KD...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: COVID-19 (in Discussion of Papers) by ToddAllen Istvan, thanks for the references! Although it isn't good news. Maybe the studies are too small or...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: COVID-19 (in Discussion of Papers) by Istvan Sorry about that. Here are the references. The study about higher risk: McCoy J, Wambier CG, Herrer...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: COVID-19 (in Discussion of Papers) by ToddAllen Istvan, thanks for the interesting report. Do you have the title of the study?... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers COVID-19 (in Discussion of Papers) by Istvan I already knew that COVID-19 may more threat us KD patients, because of severe respiratory impairmen...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers	» Refine Search » New Search

RE: Genistein promotes degradation of mutant androgen receptor (in Discussion of Papers) by ToddAllen
I saw that paper but I never tried extracted genistein in supplement form. When possible I go for f......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Genistein promotes degradation of mutant androgen receptor (in Discussion of Papers) by Dan B
Here's an old paper, but one that has not been commented on in this forum, as far as I know. A 2013......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen
Istvan, there are numerous papers on the therapeutic effects of IGF-1 in KD mouse models and tissue ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: A new leuprorelin study has published (in Discussion of Papers) by Istvan
Thank you, Dan and Todd, for your important and valuable comments. I didn’t notice the publication ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: A new leuprorelin study has published (in Discussion of Papers) by Dan B
The complete text of the article is available at this link. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: A new leuprorelin study has published (in Discussion of Papers) by Dan B
Istvan wrote: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: A new leuprorelin study has published (in Discussion of Papers) by ToddAllen
Istvan, thanks for posting this study. I checked on sci-hub for the full article but it isn’t avai......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

A new leuprorelin study has published (in Discussion of Papers) by Istvan
A new leuprorelin study has published. Here is the abstract and reference. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Two things I should have done earlier (in Medications and Therapies) by Bob Heitzman
Colostomy and Intermittent self-catheterization (ISC.) I know, yuck! As my symptoms progressed it......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Neurologist Visits (in Medications and Therapies) by Bob Heitzman
Having a neurologist on your medical team is important IMO. Since SBMA is a neuromuscular disorder i......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Neurologist Visits (in Medications and Therapies) by Ronald M.
Its certainly an individual choice. I use to go every 6 months to my neurologist and then went to ev......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Neurologist Visits (in Medications and Therapies) by Mike Murphy
My neurologist has me see her only once a year and has been that way for the last 15 years. Since th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Neurologist Visits (in Medications and Therapies) by JonH
Hi, I was curious how often the general population of KD patients meet with their neurologists eac......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Status of this study? (in Medications and Therapies) by JonH
Thanks Todd & Dan for the feedback. Guess I'll keep my fingers crossed but have little hope since th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Status of this study? (in Medications and Therapies) by Dan B
Hi Jon. The study is complete and the results of the study have been published. The abstract is at......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Status of this study? (in Medications and Therapies) by ToddAllen
I think it was stated at the KDA conference last November they have a pharmaceutical development com......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Status of this study? (in Medications and Therapies) by JonH
Has anybody heard anything further regarding this study? It seemed so promising but then..nothing b......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Lap Swimming (in Exercise Discussion) by ToddAllen
Hi Jon, welcome to the forums. I'm jealous of your swimming, my local pools have been closed since ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Lap Swimming (in Exercise Discussion) by JonH
Hi, I started experiencing KD symptoms in 2014 but it took 5 years and thousands of dollars in copa......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

RE: Assessment (in Open Topic) by LawrenceJR
Thank you both for the informative responses. I will take your inputs and they will help me formulat......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Assessment (in Open Topic) by Bob Heitzman
Note that high ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Assessment (in Open Topic) by Bob Heitzman
A common strong indicator for SBMA is if you have relatives with similar symptoms on your mother's s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Assessment (in Open Topic) by ToddAllen
My guess based on your low testosterone is you don't have Kennedy's disease. KD is a mutation of th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Assessment (in Open Topic) by LawrenceJR
Recently, I was admitted to the hospital for observation after experiencing tightness in my chest an......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Euthanasia (in Open Topic) by ToddAllen
When I was declining rapidly I wondered often about when it would become intolerable. I was impress......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Euthanasia (in Open Topic) by Bob Heitzman
Prayer!!...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Euthanasia (in Open Topic) by goodlead
What plans does anyone have for when the quality of life is so diminished that there's no point in g......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Merry Christmas and a Happy New Year! (in Open Topic) by Cam
To everyone on the forum....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Suspect I have KD, but some symptoms don't match... (in Open Topic) by ToddAllen
Here's a Black Friday sale on whole genome sequencing for $149 ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Suspect I have KD, but some symptoms don't match... (in Open Topic) by John*
Thank you Bob for the feedback, I really appreciate it....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Suspect I have KD, but some symptoms don't match... (in Open Topic) by Bob Heitzman
If anyone up your mother's side of the family tree has similar problems that would be a strong point......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Suspect I have KD, but some symptoms don't match... (in Open Topic) by John*
I've been experiencing a myriad of neuro symptoms, which as you might expect, has prompted hours of ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Concerned - Seeking Answers (in Open Topic) by Bob Heitzman
Some of your symptoms are consistent with KD, but asymmetrical muscular atrophy at 22 is not (as far......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Concerned - Seeking Answers (in Open Topic) by ToddAllen
Hi Evan, it's fairly easy to diagnose Kennedy's with a very high degree of certainty with genetic te......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Concerned - Seeking Answers (in Open Topic) by Evan
I can do the same amount of push-ups that I could 4 years ago, so that's positive. Although I defini......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Concerned - Seeking Answers (in Open Topic) by Evan
I am currently a 22 year old male. It certainly doesn't help having massive health anxiety, but I ha......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: sarms (in Open Topic) by ToddAllen
Sounds like your circumstances are limiting and many of the things I've found helpful such as exerci......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: sarms (in Open Topic) by Mike Gill
thank you Todd. Being in a nursing home at 65 is trying sometimes. Just pulling for straws to help w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: sarms (in Open Topic) by ToddAllen
Mike, I completely understand the feeling. About 5 years ago I was declining brutally fast and was ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: sarms (in Open Topic) by Mike Gill
Thank you. In my stage of decline I am willing to try anything that might be helpful....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: sarms (in Open Topic) by ToddAllen
There is an ongoing effort to develop a SARM with beneficial effects for KD. There are many SARMs co......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

sarms (in Open Topic) by Mike Gill
I have been reading about sarms and how it might help people with kD . My question is, has anyone tr......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Wondering about this (in Open Topic) by ToddAllen
Lilly, I wish I knew the source of the lead poisoning but I doubt I ever will. We found moderate am......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Wondering about this (in Open Topic) by Lilly
Thank you, ToddAllen. I am glad that you figured out you had complications with lead poisoning.....w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Wondering about this (in Open Topic) by ToddAllen
Hi Lilly, I'm sorry to hear your sister's condition is progressing quickly. Considering how rare KD......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: COVID-19 (in Discussion of Papers) by ToddAllen
Istvan, thanks for the references! Although it isn't good news. Maybe the studies are too small or......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: COVID-19 (in Discussion of Papers) by Istvan
Sorry about that. Here are the references. The study about higher risk: McCoy J, Wambier CG, Herrer......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: COVID-19 (in Discussion of Papers) by ToddAllen
Istvan, thanks for the interesting report. Do you have the title of the study?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

COVID-19 (in Discussion of Papers) by Istvan
I already knew that COVID-19 may more threat us KD patients, because of severe respiratory impairmen......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

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