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Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
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Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
There is awareness of the potential of enzalutamide as there have been studies of it and related dru......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
Thank you for your reply. We are consulting KD experts in China, but we have no results yet, I would......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
Thanks for the detailed response. It is good to see your friend is trying to collect data to evalua......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
my friend continue tests his health data...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
this is my friend response:My age is 35, and I have had three CAG repeat tests for 46,55 and 51 time......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
Sorry for my delayed response. I was hoping to find more information on the potential of ARV-766 an......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
Here it is:https://ir.arvinas.com/news-releases/news-release-details/arvinas-announces-upcoming-bavd......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
DEAR Mr.ToddAllen,Thank you for your answer.My KD friend, He took Enzalutamide for a month, CK from ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
Hi, welcome to this forum and thanks for your excellent questions. Several androgen blocking prosta......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
One topic discussed ar-protac can solve Kd problem. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
Hello,my friends,I am a kd patient from china.The questions I need to ask include the following five......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Several understandings in the diagnosis and treatment of Kennedy's disease (in Discussion of Papers) by micheldou
KD chinese technical group of the draft In November, 2023 1. Androgen blockade, how AR antagonists a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: Carrier of the disease (in Carrier Discussion) by ToddAllen
Here is a paper that suggests the KD mutation is several times more common than estimates based on r......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  Carrier of the disease (in Carrier Discussion) by Imokru2
My late brother contracted Kennedy’s but I did not. My mother of course was the carrier. I live in t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: Hopeful News (in Medications and Therapies) by ToddAllen
Both drugs are in the first phase of testing which does not tell us about the benefits or side effec......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Hopeful News (in Medications and Therapies) by Reba
Hi, everyone, Just wondering if you have seen these clinical trials and what your thoughts are: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Poll  RE: Bariatric Surgery on KD pacients (in Open Topic) by ToddAllen
Excellent post Bob, I hope you have been doing well. I have had a lot of ups and downs but my over ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Poll  RE: Bariatric Surgery on KD pacients (in Open Topic) by Bob Heitzman
I concur with Todd on Keto diet. There is a spectrum on the amount of carbs per day: Low Carb <10......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Poll  RE: Bariatric Surgery on KD pacients (in Open Topic) by ToddAllen
I did a quick search but didn't find anything on KD patients having bariatric surgery. Here is a li......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Poll  Bariatric Surgery on KD pacients (in Open Topic) by Vanko
Are there any known studies about bariatric surgery on KD pacients? I'm a 44 years old male carrier,......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Advice for pre-symptomatic patient (in Open Topic) by Pablo Crespo
Hi everyone, My name is Pablo Crespo, and I'm 24 years old. I was diagnosed with Kennedy's disease ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Treffen der von SBMA - Betroffenen in Deutschland (in German Discussion) by bluefo
Das nächste bundesweite Treffen der an SBMA (Kennedy's Disease) Erkrankten, findet am 24.06.2023 in ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > German Discussion

Discussion Topic  RE: Artificial intelligence (in Open Topic) by ToddAllen
Want to take the next small step or giant leap? It's getting much cheaper and easier. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Artificial intelligence (in Open Topic) by bartfarkel
Just for fun, I queried Chat GPT to write a CRISPR sequence that could treat Kennedy’s Disease. Here......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Increased BMs (in Open Topic) by ToddAllen
My first thought would be a food sensitivity to a regularly consumed food. I had problems with inte......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Increased BMs (in Open Topic) by raxel19
Hi there, Sorry for the potentially gross discussion, but has anyone experienced uptake in their BM......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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