Home Login/Join My Space Help Members Forums Search Today's Active Topics New Since Last Visit
Page 1 ... 15 16 17 18 19 20 21 ... 33
Go
New
Find
Tools
Search Results: (654 matches) New Search Login/Join 

Discussion Topic  RE: Dullness of Pain? (in Open Topic) by Bruce
Fisher, yes ... that is something I noticed several years ago. Where the cramps use to be intense, ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Weight Loss & KD (in Open Topic) by Bruce
Jim, I did not realize you were carrying that much weight around. Excess weight really hampers your......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Lump in throat (in Spouses & Significant Others) by Bruce
Good to hear that it is not anything serious. I keep Mucinex in my drawer when drainage becomes an ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Lump in throat (in Spouses & Significant Others) by Bruce
Luis is correct, I have not heard of a lump in the throat as a condition related to KD. That does n......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Brother-in-law has been diagnosed (in Open Topic) by Bruce
Susan, you have been given some good advice by others in this post. The DNA test is about 99+% accu......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Weak Back (in Open Topic) by Bruce
Mike, Have you discussed this issue with your doctor? Weakness in the back can be related to the ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Curcumin / ASC-J9 and related items (in Medications and Therapies) by Bruce
Dan, thanks for keeping us up to date on this. We hope to hear some positive news on J9 this fall. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Goserelin/Zoladex (in Medications and Therapies) by Bruce
Dan, you are a wealth of information. I have not heard of this trial. Thanks for keeping us up to ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  New York Times looking for Patients to Interview (in Open Topic) by Bruce
We received an email today from National Organization for Rare Disorders (NORD). Many times over th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Steroids - (in Open Topic) by Bruce
The 1999 Trial at Ohio State proved that testosterone or steroid injections were harmful. Since the......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Face Sag (in Open Topic) by Bruce
Jim, yes this is common. The bulbar muscles weaken along with everything else. My left side also s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What to expect when you have SBMA / Kennedy's Disease (in Open Topic) by Bruce
Dan, I believe the important results of this study (The Natural History of SBMA) for me was two fold......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Leuprorelin Trial Results (in Open Topic) by Bruce
Luis, this was phase three of the trial. The first two phases were focused on overall health. It i......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bruce
Jim, thanks for the commentary on this subject. For years, I was the one that did not want any blan......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bruce
An AFO that appears to work ... Murray, a past KDA board member and a person living with KD has adv......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Electronic Medical Records and Clinical Trails (in Medications and Therapies) by Bruce
Bob, you make a strong case. I also wrote about some of my frustrations with the current process in......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Most Annoying Inconviences of SBMA (in Open Topic) by Bruce
Bob, I totally understand. I carry a Tallette in a box in the car. I have had to use it a few time......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: New Exercise Program (in Exercise Discussion) by Bruce
Jim, thanks for sharing your great story. It was not too long ago when you commented, "So today my ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  AFO - One that appears to work (in Accesibility) by Bruce
Murray, a past KDA board member and a person living with KD has advised me of a new AFO that is work......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Poll  RE: bladder problems (in Open Topic) by Bruce
No, and I do not believe this is a common symptom for KD. Please check with your doctors about oth......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


» Refine Search
» New Search

  Powered by Social Strata Page 1 ... 15 16 17 18 19 20 21 ... 33 


Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org