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Discussion Topic  RE: Neuropathic Itch (in Open Topic) by John B
A slightly(!) late contribution to this thread: Over the last few weeks, I have developed chronic i......
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Discussion Topic  RE: Mutant Protein in Muscle Linked to Neuromuscular Disorder (in Open Topic) by John B
Thanks for posting this link, Bruce. The research certainly looks very promising, although given the......
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Discussion Topic  RE: Stiff Neck, anyone? (in Open Topic) by John B
Thanks Bruce, will do....
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Discussion Topic  RE: Stiff Neck, anyone? (in Open Topic) by John B
Well, despite exercise, painkillers and anti-inflammatory drugs, my neck became increasingly stiff a......
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Discussion Topic  RE: Stiff Neck, anyone? (in Open Topic) by John B
Thank you all for your replies and apologies for my delayed response. My neck mobility has improved......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Stiff Neck, anyone? (in Open Topic) by John B
Thanks Graham, I suspected it may be due to KD, although I suppose that two of us sharing the sympto......
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Discussion Topic  Stiff Neck, anyone? (in Open Topic) by John B
Over the last few months, I have begun to suffer with a permanently stiff and painful neck and wonde......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Inconsistant weakness (in Open Topic) by John B
Yes - very good point, Paul. My reflexes have definitely deteriorated (although, as with stamina, ea......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Inconsistant weakness (in Open Topic) by John B
Hi Cecilio, welcome to the forum. I was diagnosed with KD in 2008 and am fortunate that my symptom......
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Discussion Topic  Consultant Neurologist in the West Midlands (in Open Topic) by John B
Haven't logged on to the forum for several months and have discovered that we now have a GB section ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Thumbs face inward when standing. (in Open Topic) by John B
Hi Graham. Yes, I'm another 'Thumbs in'! Never noticed it before but if I had, I would have assumed ......
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Discussion Topic  RE: Thoughts on letting go of favorite activites (in Open Topic) by John B
Yes, I can empathise with Dan, Bruce & Cam regarding outdoor pursuits. I used to love mountain bikin......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Face Sag (in Open Topic) by John B
Not a bulbar muscle issue, but friends and family have commented lately that my eyelids often droop ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: NATURAL HISTORY OF KENNEDYS DISEASE (in Open Topic) by John B
Great Ideas, Jim & Bruce. I'd be very happy to participate....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Glimmer of hope for future generations? (in Open Topic) by John B
From the BBC Website: "Embryos containing DNA from a man and two women have been created by scientis......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Eye Sight (in Open Topic) by John B
Hi John. I was diagnosed with KD in 2008 at the age of 54 and I have learned much more about the con......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Observations re. KD symptoms in male forebears, siblings and other close relations (in Open Topic) by John B
It is now seeming more likely that symptoms which are being experienced by my mother (aged 82) could......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Observations re. KD symptoms in male forebears, siblings and other close relations (in Open Topic) by John B
That's very interesting, Jim, thanks - I can relate to your uncle's experience. As I've mentioned in......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Observations re. KD symptoms in male forebears, siblings and other close relations (in Open Topic) by John B
Many thanks for your comments, Bruce. I've found the Breathing exercise guide on the main site and, ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Observations re. KD symptoms in male forebears, siblings and other close relations (in Open Topic) by John B
It's been a few months since I last logged on, and am interested to see how this thread has develope......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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